Thursday, 7 May 2015

Five on a Friday

Hello.......... Today I'm joining in with Amys' Five on a Friday

Last week I turn 40 eek,  I had a wonderful few days of celebrating, first up a crafternoon a few days before my Birthday. On the day we decided to have a quite one, as I'm really not feeling very well at the moment,  after that I spent the rest of week resting up 'saving up my spoons' as they say in the world of Chronic illness for a big party on Saturday.

 At the moment the house is full of beautiful birthday flowers, I'm a lucky girl.

There are cards and flower everywhere, my nephew 'L' said on Tuesday wouldn't it be good if you get 40 cards well I ended up with a few more than that in the end.

On the gardening front, we have a bit of a mystery, as I wasn't well enough to get out, I ordered some sweet peas off of Amazon, I waited and waited and eventually they turned up not quite as expected in a foil packet all the way from China.  I planted the strange looking green seeds !! and this is what has come up!!

I'm calling them the triffids as they are huge, on checking back on Amazon I'd order 'Giant Spencer Wave mix', so I'm hoping that's why they are looking so unusual, if not who knows what I'm growing it's a bit of a mystery.

and finally

It's ME/CFS, Fibromyalgia and Lyme Awareness Month this month. I saw this imaged pop up in my Facebook feed the other day and it kinds of sums things up for me, as it's just how I feel stuck between several diagnosis that don't fit, with no help to get better.  the image is credited to Laura Brown,

I've lost 26 years to this disease, more than half my life I was just fourteen when it struck, at the moment I find myself without even a official diagnosis as ME just doesn't fit anymore.

So I'm just trying raise a bit of awareness, please check for ticks if you've been out and about in the countryside even you're local park or garden, Ticks are majorly on the increase here in the UK and Lyme disease is a terrible illness that the NHS just doesn't know how to treat.

The best I had this year from a NHS consultant is ' it's a grey area of medicine' so if you are unlucky enough to develop one of these illnesses you are well and truly on you're own no matter how sick you are.

Clare x

PS I might not be about much over the next few days as the laptop charger has just given up the ghost and I'm not really well enough to used the desktop downstairs. 


  1. Happy belated Birthday Clare. Living in the 40s is not as bad as one might think :-) I am 45! Hope you feel stronger soon.

  2. Happy 40th! How fantastic to have a party and all those cards! I'm so glad you were well enough to enjoy it. Take care x

  3. Hope you are feeling a little stronger soon, you certainly had some beautiful cards and flowers.

  4. Clare, I think of you often and wonder how you manage to put such a 'face' on to carry on as you do. think it marvellous they way you try to embrace life as much as you can. I'm so sorry you are in a 'grey' diagnosis, that does not help. but it seems you are surrounded by lots of loved ones, all those cards!!!! Sending belated birthday greetings and hope that the Saturday party goes well for you x

  5. Happy 40th Birthday! Enjoy your good days. Take care x

  6. Cant wait to see what those flowers turn out like. I'm not going to start on the medical side of things other than to say that I'm in a similar place and sympathise completely xxx

  7. I'm so sorry to read about your struggles; I sure know what it feels like to have health issues that doesn't fit into the ready made moulds of medicine and society. I'm glad you had a nice celebration of your big birthday though, and I sure hope that it won't be triffids growing in your garden...:))

  8. Happy Birthday! It is my 40th in a few weeks as well. Your flowers look gorgeous and you look like you have had a wonderful time. I sometimes wonder if i have chronic fatigue. The doctors haven't even mentioned it but I looked up online and it seemed to fit what I experience quite a bit. x

  9. Happy Birthday again!!! So glad you had such a great day with so many beautiful flowers and cards!!! Enjoy all of the spoons that you have saved! Thank you so much as always for joining in, I know that it is a lot of work for you to blog, so we all appreciate you sharing so much! I hope that you have a fantastic weekend!!! xx

  10. Happy Birthday! Lovely flowers and cards, sorry to hear that you are unwell and hope your condition improves it can't be easy for you. It will be interesting to see what your plants turn out to be Have a great weekend. :) xx

  11. Happy Birthday to you lovely! Your flowers are beautiful! Oh I can't wait to see what those plants turn into ha! I hope you feel a bit stronger and better soon, have a really great weekend xx

  12. Happy belated birthday! Wow, those flowers are beautiful. You are much loved.

  13. It sounds like you celebrated in style. Happy health for your year.

  14. Happy Birthday! It all looks like a very happy week.