This Week

Hello.......... This week at the Summerhouse has been a bit mixed, I could just share with you all the good parts, avoiding the bad,  but that's not what I tend to do on my blog, I've thought long and hard about whether I should share some more details of my ongoing  health problems in this post, as I don't want to bring anyone down, but it's a reality of my life, so here it is bad all.

The week started well with my Christmas Crocuses finally flowering in the house, well worth the wait.

 There was the gift of a new scarf too, the sun starting to get too strong (when it's out) for my  medication induced sun allergy, so this will come in very handy, I'm loving the gentle Spring colours too.

This week there have been way to many medical appointments, three in total. It's just no fun being a medical mystery, I got the brush off from yet another consultant.  Who went from saying  a few months ago 'I will get to the bottom of this', to this time saying 'Well Chronic Fatigue Syndrome, Lyme disease, POTS are all such a grey areas of medicine at least it's nothing serious, try and stay positive' 

 As for my pancreas which completely stopped working for a few months last summer, leaving it now damaged but at least working again he said 'Of all my thousands of patients, yes you are one of the rarer ones, I can't tell you what happened, but it is linked to you're Chronic Fatigue Syndrome as when your CFS relapses you're diabetes gets worse !!' .

If I do have CFS I've never heard of it effecting the pancreas like that, the Lyme Disease Association when contacted said Yes Lyme disease could do that, but of course according to NHS consultants 'It's not that', it's a 'Grey Area' you know.

I could have screamed at him had I the energy, 'not serious !!!' it's had a serious and devastating effect on my life for the last twenty years !!! Mostly housebound, only out of bed a hour or so a day, having to use a wheelchair, organs packing up with no explanation, is pretty serious to me. Sorry rant over, sometimes it's just so frustrating.

My GP was much more helpful and ordered a load of blood tests, saying 'You have never had a definitive diagnosis, it's got to be something endocrine and autoimmune, maybe something completely new but we just don't know what, so hopefully something will show up in the tests, I'm not getting my hopes up though.

Merlin didn't fair much better, he's a cat with a very sore ear at the moment and he made the vet aware of it by having a diva style hissy fit on Wednesday, he's not a happy boy and left both the vet and I bleeding to make his point.  So I'll be spending the next week chasing him around the house with a bottle of ear drops. It's not going to be easy with energy levels at zero,I'm spending most of my time stuck in bed at the moment four months into this relapse.

At least spring in coming along nicely out in the garden,

I do love this time of year.

The Polyanthus are waiting patiently to be planted in the Summerhouse window boxes, Pinks Yellows and Purple this year.

Fridays Eclipse was a strange one here at the Summerhouse sadly it was way to cloudy to see, but it did get very dark and gloomy, not a bird was to be found in the sky, the air kind of still and eerie.   Amazing that it fell on the Spring Equinox as well.  

It felt odd not to be assembling my Springtime wreath this year as is my tradition on the solstice, but it's currently in the craft exhibition, at least it will be back in time to be decorated for Easter.

So most of this week has been spent feeling pretty rotten, recovering in bed from various medical appointments, sadly no crafting was done at all, but at least these pretty roses were here to cheer me up.  Fingers crossed I'll be heading out of this relapse soon.

Clare xx